Lifestyle

Couple keen to help find cure to rare iron disease

INFANT TRAGEDY: A Neonatal Hemochromatosis Society fundraising golf day was held at Sandy Gallop Golf Club.
INFANT TRAGEDY: A Neonatal Hemochromatosis Society fundraising golf day was held at Sandy Gallop Golf Club. David Nielsen
INFANT TRAGEDY: A Neonatal Hemochromatosis Society fundraising golf day was held at Sandy Gallop Golf Club.
INFANT TRAGEDY: A Neonatal Hemochromatosis Society fundraising golf day was held at Sandy Gallop Golf Club. David Nielsen

AN IPSWICH couple who lost their firstborn to a rare medical condition has raised more than $15,000 for research.

After Gary and Kelly Hiles spoke about the death of son Marcus from neonatal hemochromatosis (NH) earlier this year, supporters came from all corners to offer help.

On top of private donations - one for $1000 - more than 140 people took part in a fundraising golf day at the Sandy Gallop Golf Club yesterday.

"We set ourselves a goal to raise $10,000. At last count, we were up to $15,000," Mr Hiles said.

"The figure is still rising because we haven't done our auctions, cakes sales and raffles yet."

Money raised from the day will go toward research into NH, a condition in which toxic levels of iron accumulate in the unborn baby's liver.

If it does not result in a stillbirth, NH usually kills the infant within the first few weeks.

Making matters even worse, mothers affected by the condition once have a greater-than 80% chance of having a subsequent child with NH.

The Hileses' story struck a chord with Brisbane mums Karen Roberts and Nicole Ireland - both of whom have lost children to NH, but have since received treatment enabling them to give birth to healthy babies.

Mrs Roberts said it was important for women to know help was available.

"I really feel for Kelly - to have lost her first child," Mrs Roberts said, "but I have such faith that she will have a healthy child one day."

The treatment Mrs Roberts and Mrs Ireland underwent has been developed by American specialist Dr Peter Whitington of the Lurie Children's Hospital in Chicago.

Women in Australia have been able to receive the treatment through locally based specialists in consultation with Dr Whitington.

Topics:  sandy gallop golf club



It's bigger and better than ever

HONOURED: Past winner Leigh-Anne Hargreaves with her work "Poppy Bella”.

Ipswich Art awards return

Generous pay cheque for dull ideas

Australia Post.

I wouldn't mind $4.4 million a year

Sportsbet installs LNP as favourites at next election

SPEAKING OUT: Sean Choat agrees with Sportsbet on the LNP being favourite to form government at the next state election, but says the party must learn lessons from the past.

Choat agrees with bookies but insists lessons of past must be heeded

Local Partners

Un-American tale makes Lion weakest link in Oscars line-up

PSYCHOLOGY researchers find US films and actors most likely to win accolades at the Oscars.

Can rightful winner Midnight take out golden Gosling in Oscars?

Can Lion pip La La Land at the post in this year's Oscars? Sunny Pawar (pictured) helped bring a powerful film to the big screen.

WILL Aussie film Lion triumph or will popular La La Land prevail?

Living End, Grinspoon stars hit stage for American Idiot

Chris Cheney of The Living End stars in the Australian production of Green Days musical American Idiot at Brisbane's QPAC Theatre.

TAKE a look behind the scenes of Green Day's American Idiot musical

Samuel L Jackson dismisses La La Land ahead of Oscars

Ryan Gosling and Emma Stone in a scene from the movie La La Land.

Hollywood actor and Oscars voter says Denzel should win top gong

Live performance of Sci-fi classic to open Science Festival

Qld Symphony Orchestra perform live to 2001: A Space Odyssey.

Festival will host A Live Presentation of 2001: A Space Odyssey.

Former Family Matters stare accused of child abuse

Reginald VelJohnson, left, and Darius McCrary arrive at the TV Land Awards on Sunday, April 19, 2009 in Universal City, Calif.

Darius McCrary has been accused of child abuse

The trick homeowners are using to buy more properties

Chantelle Subritzky leaves her home each week for Airbnb guests.

Queenslanders are going down this path to help pay their mortgages

Stunning home blends South Pacific beauty with Orient style

Immaculate residence with two outdoor living areas

WARNING: 'Sardine city' is on Ipswich's horizon

CONCERNED: The implications of the State's move to denser housing developments has Cr David Pahlke up in arms.

But Antoniolli says council can manage State's denser housing edict

Grand re-launch for new Nolan's Corner

GRAND PARTY: Wayne Kemp and Angela Love from Poison Arrow, Eliza Woodruffe from Limestone Emporium, Tess Claris from Voice Hair and Beauty and Kim Schubel from Schudio will all be at the grand launch party.

A feat worth celebrating

$140k damage: landlord says property trashed, contaminated

He had what he calls "the tenants from hell"

Ready to SELL your property?

Post Your Ad Here!