Topics:  huntingdon's disease, linda henderson, long black please

Linda honoured for her inspiring tale

PERSONAL TRIBULATIONS: Linda Henderson with her book, which has earned her an invitation to New Zealand.
PERSONAL TRIBULATIONS: Linda Henderson with her book, which has earned her an invitation to New Zealand. Contributed

LINDA Henderson's tale of her experiences in dealing with Huntingdon's disease has earned her an invitation to a conference in New Zealand next year.

She wrote the book, Long Black, Please as therapy for dealing with her own distress and the strain of caring for her father, who suffers from the disease.

She believes her mother died from the strain of caring for him.

"The conference is being organised by Richard Faull, professor of anatomy at the University of Auckland, who is a world authority on the disease," she said.

"When I came from New Zealand to live in Laidley, I presented the draft to Andrea Kwast from Tell Me A Story Bookshop. Andrea fell in love with it and decided she just had to publish it. I also sent a copy of the first draft to Richard Faull who said the book encouraged him in his work. ''

Prof Faull has described the book as a compelling journal of personal sadness, love, hope and ultimate challenge which engages the reader right from the very beginning.

Ms Henderson said the title refers to her ready fall-back: a good coffee when seeking a quiet moment to herself.

Ms Kwast said the book is an emotional, connecting read: "It is a book about living life, and not about being sick and unwell."



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