Lifestyle

Help brave little Lilly live with hearing loss

Lilliana Robertson with her parents Matia and Dale and eight-day-old sister Adelina.
Lilliana Robertson with her parents Matia and Dale and eight-day-old sister Adelina. Sarah Harvey

ONE-YEAR-OLD Lilliana Robertson loves butterflies - not just for their beauty, but because they share the same condition.

Like butterflies, Lilly was born deaf.

Upon meeting the bubbly Coominya tot, you wouldn't know she suffers partial hearing loss.

Yet two in every 1000 children are born with hearing complications in Australia each year, according to the Hear and Say foundation, which has launched the Butterfly Appeal to raise money for deaf kids.

Lilly's parents Matia and Dale Robertson, were told their first child was profoundly deaf after she was born eight weeks premature, weighing just 950 grams.

After a series of tests doctors diagnosed Lilly with auditory neuropathy spectrum disorder (ANSD) - a condition affecting the transmission of sound from the inner ear to the brain.

"She can hear soft sounds, but we just don't know how clearly," Mrs Robertson said.

"They can't figure that out until she starts talking some more."

While premature babies are more at risk of developing ANSD, the cause behind Lilly's diagnosis remains unknown.

"In the beginning she was diagnosed profoundly deaf," Mr Robertson said.

"It was devastating, but we decided if that's what it is then that is what we will deal with.

"She had a high bilirubin count and had to have a blood transfusion at five days old so it could have been from that.

"She may need a cochlear implant depending on how her speech goes. But the doctors said they'd never had a baby with the turnaround she has had."

Lilly must attend auditory verbal therapy each fortnight through Hear and Say, a Queensland charity which helps children with hearing impairments to speak.

It costs $10,000 per child per year to undergo the therapy.

The Robertsons said they would be lost without the help they received from Hear and Say and were urging people to donate to the Butterfly Appeal.

Hear and Say chief executive Chris McCarthy said the charity must raise more than $4 million this year, through community and corporate support, so that no deaf child needs to live in silence.

You can buy merchandise in March from KFC or online at www.butterflyappeal.com.

 

Hearing loss

  • 2.5 in 1000 children are born with hearing loss.
  • Two in every 1000 children develop hearing loss by age five.
  • Hearing impairment is the most common disability in children.

Topics:  charity, children, health, lifestyle




Stay Connected

Update your news preferences and get the latest news delivered to your inbox.

Having battled PND four times, Mel says the secret is sleep

'I just thought, don’t all mothers get no sleep?’

'My husband lasted 6 weeks as a stay at home dad'

APN Hey Mummy Feature for online - stock images. Katie Dykes being interviewed for the webisodes. Photo Marc Stapelberg / The Northern Star

FROM the outside, being a stay at home mum looks like a breeze.

THE EXPERT: Stop judging working mothers

SUPER MUMS: Being a working mums comes down to perfecting time management.

"WORKING for money is all right; so is working because you want to.”

Health and nutrition with kids - how do you balance it?

HOW important is health and nutrition in your household?

Smack or no smack - where do you stand?

THE debate is reignited - is smacking acceptable?

Technology and kids: Do you ever cut their wi-fi?

Check out our new video series featuring mums having a chat

Council dumps higher charges on residents

RISING PRICES: Eastern Heights resident Dave Clark says if the council should towards a user pays system to cover the cost of dumps instead of “sneaking” prices up gradually.

From August 1 residents will pay $10

Vow to unite Ipswich with NBN

CATCH UP: Blair incumbent Shayne Neumann wants to get Labor’s NBN back on track if Bill Shorten wins government.

Candidates debate fibre to the node or fibre to home

Latest deals and offers

Clive Palmer to re-open refinery

Clive Palmer on ABC radio.

Clive Palmer talks about his achievements, election chances and re-opening the...

Dr Ian MacDonald

Dr Ian MacDonald gets the all clear to retire from Brassall Medical Clinic staff Larissa Meldrum and Linda Davey.

Dr Ian MacDonald

Vox Pop: Council's rate increase

Mayor Paul Pisasale.

Members of the public speak out on Ipswich City Council's rate increase.

Arts and culture get a boost in council budget

HAPPY CAMPER: Council’s culture boss Cr Charlie Pisasale will be delighted $400,000 has been allocated for a business case investigation for IPAC.

IPAC at the forefront of councillor's agenda

Burnett Heads housing development approved

COUNCIL APPROVED: A Burnett Heads housing development has been approved by Bundaberg Regional Council. Photo Contributed

Councillors approved the development seven votes to four